RYKER STRONG on RARE DISEASE DAY!

Today is Rare Disease Day, and we here at the Steen household are overwhelmed by the love and support of our family, friends, and our community as we spread awareness about Rare Disease Day, and specifically, Joubert Syndrome.

My awesome friends and co-workers at my company, Coldwell Banker Mid-America Group, Realtors, rallied together and raised nearly $1,500 for the Joubert Syndrome and Related Disorders Foundation, and donations are STILL coming in!  PLUS, we all wore jeans to work today to celebrate rare genes!  I am truly thankful for every single person I work with, and am SO blessed to work for such a wonderful company!

In addition to work, friends and family from ALL over have been sharing pictures of their RYKER STRONG bracelets (with #takethatjoubert).  Check out some of the pics below!

AND, going above and beyond, students from Lamoni High School in southern Iowa spent time today learning about Joubert Syndrome. These awesome students (under the leadership of their awesome teacher -- my Uncle Jon!) sent us the following video to let us know they're RYKER STRONG:

Thank you ALL for your support of Rare Disease Day, your help in spreading the word about Joubert Syndrome and Rare Disease Day, and your excitement about being RYKER STRONG!  This journey would be much more difficult without each and every one of you in our lives!